Dear Spot and jazzvalve.
This very moving web page has touched me. As a father of a child with Cystic Fibrosis the loss of a beautiful child is a reality to me. This reality changes everything about how you view and live THIS life. We (my family and I) live every day as though it was our last, show love daily and believe that this plane of life is but a stopping point in our life journey.
Spot, through this site your positive energy has radiated and I will keep you and your son in my thoughts.
Bryan
There are no words that can truly descibe a loss of a child or watching your child die in your arms. The pain of having any child suffer is hard enough. BPB, jazzvalve, you are right on!
Spot's web page is very moving and BPB's description says it all.